YES...it's been an insane month! I have lots to write about and hopefully will be able to stay awake tonight to update about the entire month. Haven has been busy with school, we've had lots of doctor appts this past 33 days, it's been a month and our car still hasn't been fixed by wonderful Geico, my dad has been in and out of the hospital all month with no results! Just been crazy!
So I should be updating all week......
Learning sustainability for our family and taking care of kids. Becoming a chicken mom in 2020! Our oldest- Haven, 17, was diagnosed with Neuroblastoma Cancer and ROHHAD Syndrome at age 3. We continue to battle these today.
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ROHHAD in Ireland
I received this story in my email today. It still shocks me that my daughter has ROHHAD. It's a horrible disease that destroys a child...
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Hi everyone. It's been a long time since I sat and wrote about our daughter's extremely rare disease diagnosis. Literally 15 years a...
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I received this story in my email today. It still shocks me that my daughter has ROHHAD. It's a horrible disease that destroys a child...
Dear Misty,
ReplyDeletePraying that everything will settle down and that there will be good news for your dad.
Please tell Miss Haven that I said a big hello to her and that I wish her a wonderful weekend.
Still keeping Haven and famiy in prayer.
With love & prayers,
Wylene