Her next Oncology appointment is in January. To explain a bit of IVIG -
Intravenous immunoglobulin
IVIG is: a blood product administered intravenously. It contains the pooled IgG (immunoglobulin (antibody) G) extracted from the plasma of over one thousand blood donors. IVIG's effects last between 2 weeks and 3 months.
IVIG is used mostly for the following diseases:
- Allogeneic bone marrow transplant
- Chronic lymphocytic leukemia
- Idiopathic thrombocytopenic purpura
- Pediatric HIV
- Primary immunodeficiencies
- Kawasaki disease
- Chronic inflammatory demyelinating polyneuropathy (CIDP). Only the "Gamunex" brand manufactured by Talecris is approved for CIDP (in 2008), under the U.S. Orphan Drug law provisions
- Kidney transplant with a high antibody recipient or with an ABO incompatible donor
However, it is in Phase 3 testing of Alzheimer's Disease but can be used in these and others as well:
- Autism
- C. Diff
- Guillain-Barré syndrome
- Muscular Dystrophy
- Stiff person syndrome
- Opsoclonus Myoclonus
Haven really has never had any side affects from IVIG except she does sleep the entire day it is received - but back to normal the next.
Any word on when the sleep study will be yet? We continue to hope that she continues to improve and that life gets easier on your family. Miss seeing you guys and reading your facebook posts. As always, call if you guy's need anything and tell Kris hello.
ReplyDeleteMike
Hi, Miss Haven!
ReplyDeleteWhat great news that you are doing so well.
I hope you and your family are having a wonderful super-duper weekend.
Bye for now!
With love and prayers,
Wylene