Learning sustainability for our family and taking care of kids. Becoming a chicken mom in 2020! Our oldest- Haven, 17, was diagnosed with Neuroblastoma Cancer and ROHHAD Syndrome at age 3. We continue to battle these today.
Saturday, October 16, 2010
Flu Mist
If you choose to get the flu mist this season do not expect to visit Haven for at least 7 days after receiving. This is the live virus and could put her in the hospital.
Haven's school administers the flu mist 2 times a year and Haven had to be taken out of school October 8th until October 15th. She was able to get the flu shot this year.
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ROHHAD in Ireland
I received this story in my email today. It still shocks me that my daughter has ROHHAD. It's a horrible disease that destroys a child...
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Hi everyone. It's been a long time since I sat and wrote about our daughter's extremely rare disease diagnosis. Literally 15 years a...
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I received this story in my email today. It still shocks me that my daughter has ROHHAD. It's a horrible disease that destroys a child...
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