February 8th
7:00 am
Scanning tumor in abdomen
Pelvis area
Brain - due to high prolactin levels and possibility of a tumor in the Pituitary
We will be in MRI for about 4 hours and then recovery. As long as Haven does not have any respiratory issues and keeps her O2 above 94 she will be released. Normally her MRI is about 2 hours and it takes about 1 hour for her O2 to climb back up so I'm a little concerned with being under anesthesia this long. It may take a few hours for her O2 to get to a stable point.
Our hope is that tumor in the abdomen is still stable and has not grown and that there is no tumor in the Pituitary.
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ROHHAD in Ireland
I received this story in my email today. It still shocks me that my daughter has ROHHAD. It's a horrible disease that destroys a child...
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Hi everyone. It's been a long time since I sat and wrote about our daughter's extremely rare disease diagnosis. Literally 15 years a...
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I received this story in my email today. It still shocks me that my daughter has ROHHAD. It's a horrible disease that destroys a child...
Dear Misty,
ReplyDeletePraying for good results from the MRI that Miss Haven will have soon. Please tell her that I said hello to her and that I'm sending lots of hugs her way! ((((((((((((((((((LOTS OF HUGS))))))))))))))))))
With caring prayers,
Wylene
Mist; I am so sorry that this just continues and continues; I also hope there are no more serious set backs. I have you and Havey on my mind everyday and night.
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