I know everyone is anxiously awaiting Haven's adventure in Florida. We didn't have internet at the villiage so I was not able to update. However, Haven is going through her photos today and picking her favorites to go on her site tonight. The rest of the photos will be on Haven's FLICKR site. So we will have updates!
We are back home now and even though they told me Haven wouldn't lose a tooth until about age 7 it seems that we will be receiving a visit from the tooth fairy any day now!
Deez is also about to lose 2 of her teeth. The babies are growing up! :)
Learning sustainability for our family and taking care of kids. Becoming a chicken mom in 2020! Our oldest- Haven, 17, was diagnosed with Neuroblastoma Cancer and ROHHAD Syndrome at age 3. We continue to battle these today.
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ROHHAD in Ireland
I received this story in my email today. It still shocks me that my daughter has ROHHAD. It's a horrible disease that destroys a child...
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Hi everyone. It's been a long time since I sat and wrote about our daughter's extremely rare disease diagnosis. Literally 15 years a...
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I received this story in my email today. It still shocks me that my daughter has ROHHAD. It's a horrible disease that destroys a child...
can't wait to see the pictures of Haven on her Make A Wish trip.
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