These are just some photos Haven wanted me to take to share with everyone. She got a cute little doggie purse and had to have a picture taken.
This is half the babies she brings out of her room every day. They all go straight to the couch. She says she can't pick just one or two because the others will get sad without her. She is limited to 3 babies when we go to stores and it takes her about 30 minutes to decide which 3 go.
Learning sustainability for our family and taking care of kids. Becoming a chicken mom in 2020! Our oldest- Haven, 17, was diagnosed with Neuroblastoma Cancer and ROHHAD Syndrome at age 3. We continue to battle these today.
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ROHHAD in Ireland
I received this story in my email today. It still shocks me that my daughter has ROHHAD. It's a horrible disease that destroys a child...
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Hi everyone. It's been a long time since I sat and wrote about our daughter's extremely rare disease diagnosis. Literally 15 years a...
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I received this story in my email today. It still shocks me that my daughter has ROHHAD. It's a horrible disease that destroys a child...
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