Haven's 4th Birthday party and Stryder's 1st Birthday!
Learning sustainability for our family and taking care of kids. Becoming a chicken mom in 2020! Our oldest- Haven, 17, was diagnosed with Neuroblastoma Cancer and ROHHAD Syndrome at age 3. We continue to battle these today.
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ROHHAD in Ireland
I received this story in my email today. It still shocks me that my daughter has ROHHAD. It's a horrible disease that destroys a child...
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Hi everyone. It's been a long time since I sat and wrote about our daughter's extremely rare disease diagnosis. Literally 15 years a...
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I received this story in my email today. It still shocks me that my daughter has ROHHAD. It's a horrible disease that destroys a child...
Haven and Styder look like they had a great birthday. Wish I could have been there; they are the children I will not see very often.
ReplyDeleteHaven looks great with her hair cut. I love both Styder and Haven.
We love all of you including by brother:)
Haven is beautiful and Stryder looks like his great-grandpa and his mother, again beautiful. I'm sad that I won't get to see them much or know them as well as I would like. Happy birthday.
ReplyDeleteLove, Aunt Jill