Learning sustainability for our family and taking care of kids. Becoming a chicken mom in 2020! Our oldest- Haven, 17, was diagnosed with Neuroblastoma Cancer and ROHHAD Syndrome at age 3. We continue to battle these today.
Monday, February 11, 2008
Grandpa Beard Off and Grandma Sing visit
Grandpa and Grandma came out from Utah to visit Haven over her birthday and to stay with her through surgery. Below are a few photos. It was a quick two weeks - too bad we had to spend one week of the two weeks in the hospital. Hopefully the next visit we'll be able to get out and do some things.
Subscribe to:
Post Comments (Atom)
ROHHAD in Ireland
I received this story in my email today. It still shocks me that my daughter has ROHHAD. It's a horrible disease that destroys a child...
-
Hi everyone. It's been a long time since I sat and wrote about our daughter's extremely rare disease diagnosis. Literally 15 years a...
-
I received this story in my email today. It still shocks me that my daughter has ROHHAD. It's a horrible disease that destroys a child...
No comments:
Post a Comment