Haven did a great job today at her mIBG. She is so loved by all her doctors. She met with the nurse you see in the first picture and they let her pick out her smell for the mask. They put chapstick in it so it has a good smell. She picked chocolate.
This is her getting her stickies on so they could monitor the heart rate.
They even let Haven gas herself. It was so cute. Her arms started getting weak and she could barely hold the mask on her face.
After a couple seconds the nurse took over and gave her a good hold on the mask. She was out quick. We gave her a bunch of kisses and left her to her testing.
Two hours later we were in recovery and she was doing great. All she ever wants to do is get the IVs out. They were able to put the IV in on the first try.
This test was needed before surgery. It will show the doctors exactly where all the cancer is in her body. Plus what we like is that the radiation starts working on the tumor before surgery. She was awake so easy out of this one and ready to go that they let her leave after only 40 minutes in recovery. She was an absolute angel.
Learning sustainability for our family and taking care of kids. Becoming a chicken mom in 2020! Our oldest- Haven, 17, was diagnosed with Neuroblastoma Cancer and ROHHAD Syndrome at age 3. We continue to battle these today.
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ROHHAD in Ireland
I received this story in my email today. It still shocks me that my daughter has ROHHAD. It's a horrible disease that destroys a child...
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Hi everyone. It's been a long time since I sat and wrote about our daughter's extremely rare disease diagnosis. Literally 15 years a...
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I received this story in my email today. It still shocks me that my daughter has ROHHAD. It's a horrible disease that destroys a child...
Way to go Haven!!!
ReplyDeleteOh, and HAPPY BIRTHDAY!
We wish we could be there to celebrate with you. Give Brown Dog a pat on the head for Phillip and Luke.
We love you.
James, Martha, Phillip, Luke and Lindy