Learning sustainability for our family and taking care of kids. Becoming a chicken mom in 2020! Our oldest- Haven, 17, was diagnosed with Neuroblastoma Cancer and ROHHAD Syndrome at age 3. We continue to battle these today.
Sunday, January 13, 2008
Flowers with Mom
Well my 3 wick candle finally burned out and I do not have any more. So while out at Ikea today I decided to go big and spend my $5 on some rocks and twigs. :) Yes, it has lots of curly cues and funky white things and some green fake leaves. Looks beautiful and Haven helped me do it.
Dad got a couple pictures of us working through the mess. We have a lot of fun doing this stuff.
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ROHHAD in Ireland
I received this story in my email today. It still shocks me that my daughter has ROHHAD. It's a horrible disease that destroys a child...
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Hi everyone. It's been a long time since I sat and wrote about our daughter's extremely rare disease diagnosis. Literally 15 years a...
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I received this story in my email today. It still shocks me that my daughter has ROHHAD. It's a horrible disease that destroys a child...
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