If you've never had to go in to a Pediatric Oncology room or visit a floor you should count your lucky stars. It's one of the worst places we have been in for the past 6 years. You meet children and you play games and crafts with them and then the next time you visit you find out they didn't make it. Or you see a newborn or a 6 month old baby receiving chemo and it just breaks your heart. WHY?
Just very very sad.
Today they had a party for a little girl who was receiving her last dose of chemo and she got to ring the bell. I was so happy for her and her parents.
Subscribe to:
Post Comments (Atom)
-
Hi everyone. It's been a long time since I sat and wrote about our daughter's extremely rare disease diagnosis. Literally 15 years a...
-
I received this story in my email today. It still shocks me that my daughter has ROHHAD. It's a horrible disease that destroys a child...
No comments:
Post a Comment