Learning sustainability for our family and taking care of kids. Becoming a chicken mom in 2020! Our oldest- Haven, 17, was diagnosed with Neuroblastoma Cancer and ROHHAD Syndrome at age 3. We continue to battle these today.
Sunday, January 27, 2013
HAPPY 9TH BIRTHDAY HAVEN!!!
Happy birthday to my beautiful baby girl!!!! Can't believe you are 9 years old today. In your short 9 years you've managed to overcome cancer and survive some of the scariest surgeries and have taken control of ROHHAD Syndrome. You amaze me and your father and we couldn't be more proud of you!!!!
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ROHHAD in Ireland
I received this story in my email today. It still shocks me that my daughter has ROHHAD. It's a horrible disease that destroys a child...
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Hi everyone. It's been a long time since I sat and wrote about our daughter's extremely rare disease diagnosis. Literally 15 years a...
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I received this story in my email today. It still shocks me that my daughter has ROHHAD. It's a horrible disease that destroys a child...
I cannot believe she is 9, the time has gone so fast and she has been through so much. I still consider her a miracle baby. I remember the day you told me you and Kris were expecting, fantastic day. Haven many more Happy Birthday's your Aunt Candy, I think about you often.
ReplyDeleteBelated Happy 9th Birthday, Haven. Hope it was a great one.
ReplyDeleteWith love, prayers and best wishes,
Wylene