Check out the Desert Dove Tea Room website in St. George, Utah. Miss Haven was a featured story. She had a great time there with her dad on her last trip out for Chemo.
DESERT DOVE TEA ROOM
Learning sustainability for our family and taking care of kids. Becoming a chicken mom in 2020! Our oldest- Haven, 17, was diagnosed with Neuroblastoma Cancer and ROHHAD Syndrome at age 3. We continue to battle these today.
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ROHHAD in Ireland
I received this story in my email today. It still shocks me that my daughter has ROHHAD. It's a horrible disease that destroys a child...
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Hi everyone. It's been a long time since I sat and wrote about our daughter's extremely rare disease diagnosis. Literally 15 years a...
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I received this story in my email today. It still shocks me that my daughter has ROHHAD. It's a horrible disease that destroys a child...
Haven, you are a miracle. I really miss you very much. Someday I will see you again
ReplyDeleteLove, Aunt Candy