We have had an insane few months...but updates to come. Haven is doing well! If you've been on my facebook you have been kept up to date in our world...but we have lots of friends out there we want to give some shout outs to as well!
Love to all
Learning sustainability for our family and taking care of kids. Becoming a chicken mom in 2020! Our oldest- Haven, 17, was diagnosed with Neuroblastoma Cancer and ROHHAD Syndrome at age 3. We continue to battle these today.
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ROHHAD in Ireland
I received this story in my email today. It still shocks me that my daughter has ROHHAD. It's a horrible disease that destroys a child...
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Hi everyone. It's been a long time since I sat and wrote about our daughter's extremely rare disease diagnosis. Literally 15 years a...
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I received this story in my email today. It still shocks me that my daughter has ROHHAD. It's a horrible disease that destroys a child...
Hi, Misty!
ReplyDeleteCan't wait to read the updates! Please tell Haven that I said hello to her.
With prayers & best wishes,
Wylene