Well we had a pulmonary visit yesterday. Nothing new to report. This was a pre-sleep study visit. Haven's next sleep study is on October 14th. She has had some crazy snoring so we started her on Flonase each night. It's actually a different name but I can't remember it because it's so long. But it's practically the same thing as Flonase.
She is home from school today due to the flu mist being administered at school. She now weighs in at 86 lbs and 45" tall.
Learning sustainability for our family and taking care of kids. Becoming a chicken mom in 2020! Our oldest- Haven, 17, was diagnosed with Neuroblastoma Cancer and ROHHAD Syndrome at age 3. We continue to battle these today.
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ROHHAD in Ireland
I received this story in my email today. It still shocks me that my daughter has ROHHAD. It's a horrible disease that destroys a child...
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Hi everyone. It's been a long time since I sat and wrote about our daughter's extremely rare disease diagnosis. Literally 15 years a...
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I received this story in my email today. It still shocks me that my daughter has ROHHAD. It's a horrible disease that destroys a child...
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