Learning sustainability for our family and taking care of kids. Becoming a chicken mom in 2020! Our oldest- Haven, 17, was diagnosed with Neuroblastoma Cancer and ROHHAD Syndrome at age 3. We continue to battle these today.
Thursday, April 8, 2010
TWO YEARS
IMPORTANT DATE: JUNE 6, 2010 --- NATIONAL CANCER SURVIVORS DAY
Haven's stage of cancer is noted to have a 70 - 90% five year survival rate.
There are less than 5 children out of 1,000,000 children born who have Ganglioneuroblastoma Cancer.
Well it's been exactly 2 years today since Haven received her first dose of chemotherapy - RITUXIMAB. She began with about 2 months of chemo 4 days a week that tapered over the next year.
Exactly 1 year ago Haven began her 5 years to become cancer free!!!! So in April 2014 we will have a huge party at the house as Haven marks her 5 years!!!!
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ROHHAD in Ireland
I received this story in my email today. It still shocks me that my daughter has ROHHAD. It's a horrible disease that destroys a child...
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Hi everyone. It's been a long time since I sat and wrote about our daughter's extremely rare disease diagnosis. Literally 15 years a...
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I received this story in my email today. It still shocks me that my daughter has ROHHAD. It's a horrible disease that destroys a child...
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