Learning sustainability for our family and taking care of kids. Becoming a chicken mom in 2020! Our oldest- Haven, 17, was diagnosed with Neuroblastoma Cancer and ROHHAD Syndrome at age 3. We continue to battle these today.
Wednesday, April 7, 2010
Friends Of Haven
I posted earlier that I was working on a friends of Haven section! I have many of them but of course not all of them! You can check them out at the right side of the screen or click the links below to go to their specific section.
Sophia Adamo
Jessica Magnus
Denika
Mason Byrom
Charlize Joliat
Jessica Haight
Alexis
Niketa Brown
Noreen
Jenna
Josh Wooten
Message from Haven: We love you all! Thank you for your pictures and stories!
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ROHHAD in Ireland
I received this story in my email today. It still shocks me that my daughter has ROHHAD. It's a horrible disease that destroys a child...
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Hi everyone. It's been a long time since I sat and wrote about our daughter's extremely rare disease diagnosis. Literally 15 years a...
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I received this story in my email today. It still shocks me that my daughter has ROHHAD. It's a horrible disease that destroys a child...
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