Tuesday, January 5, 2010

Haven's 2009 Year In Review





Highlights:

Disney trip - Thank you to Johns Hopkins Riverside for adopting our family

Chemo Treatments: Cyclosporin, Rituxan, High Dose Cytoxin, High Dose Dexamethasone

Isolation: All Summer for High Dose Cytoxin and October for High Dose Dexamethasone

Surgeries: Eye surgery, Foot surgery, Central Line insertion, Central Line removal

Days spent in hospitals or doctors offices: 180


Thank you to everyone that helped us get through 2009. We hope for more fun and less hospitals in 2010!
Posted by at
Labels: ,

2 comments:

  1. AnonymousJanuary 6, 2010 at 12:09 PM

    Hi, Misty!

    Thanks for the year in review of 2009. I loved looking at the photos and reading the synopsis of the happennings of the year.

    Praying that 2010 will be a year of lots of fun for Haven and family and that Haven can avoid the hospital.

    With caring prayers,

    Wylene

    ReplyDelete
  2. AnonymousJanuary 7, 2010 at 7:33 AM

    What a beautiful brave little girl. Happy New Year Haven!! May 2010 be wonderful for you!! Huuuuugs!

    ReplyDelete

Subscribe to: Post Comments (Atom)

ROHHAD in Ireland

 I received this story in my email today. It still shocks me that my daughter has ROHHAD. It's a horrible disease that destroys a child...

  • ROHHAD 15 Years Later
    Hi everyone. It's been a long time since I sat and wrote about our daughter's extremely rare disease diagnosis. Literally 15 years a...
  • ROHHAD in Ireland
     I received this story in my email today. It still shocks me that my daughter has ROHHAD. It's a horrible disease that destroys a child...