Friday evening Grandma and Grandpa arrived for Haven's party weekend. Quickly Grandma, Haven, and Grandpa jumped to making the birthday cup cakes that Haven had picked out.
The cup cakes were cute little pink heart shapes. They did a great job and the cup cakes were delicious!
Afterwards Grandma and Haven worked on their looming project. Grandma helped by showing Haven how to do it and then Haven took over! As you can see in the background Deez is happily napping!
Learning sustainability for our family and taking care of kids. Becoming a chicken mom in 2020! Our oldest- Haven, 17, was diagnosed with Neuroblastoma Cancer and ROHHAD Syndrome at age 3. We continue to battle these today.
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ROHHAD in Ireland
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Hi everyone. It's been a long time since I sat and wrote about our daughter's extremely rare disease diagnosis. Literally 15 years a...
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I received this story in my email today. It still shocks me that my daughter has ROHHAD. It's a horrible disease that destroys a child...
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