Sorry everyone - I had hoped to have a bit of energy this weekend to get some photos up and an update on Haven. But it has been a weekend of no sleep and I just didn't even care to turn the computer on. I didn't even have my phone on this weekend.
I will hopefully get some updates on here Monday evening.
Love to all
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Hi everyone. It's been a long time since I sat and wrote about our daughter's extremely rare disease diagnosis. Literally 15 years a...
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I received this story in my email today. It still shocks me that my daughter has ROHHAD. It's a horrible disease that destroys a child...
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