MRI results came back today - Kris reviewed them with Haven's doctor and EVERYTHING IS GREAT!
The tumor that still remains has not grown since last May so we will continue to focus on ROHHAD and monitor the cancer.
Thank you to everyone thinking about Haven! She is currently in chemo at the hospital. They have been there since 8am and she should be coming home today around 5pm - as long as it all goes well.
Love to all
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Hi everyone. It's been a long time since I sat and wrote about our daughter's extremely rare disease diagnosis. Literally 15 years a...
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I received this story in my email today. It still shocks me that my daughter has ROHHAD. It's a horrible disease that destroys a child...
so glad you had good news about the tumor... hopefully chemo will go smoothly.
ReplyDeleteMisty this is great news about the MRI; I would not like to see her freak out either; as you said the doctor's know what they are doing.
ReplyDeleteI hope she if feeling better by now