Update on Miss Haven

Well she has been a bit sick the past week. We started with one toe being infected again. Kris took her to the doctor and I called Johns Hopkins immediately. She's been running a fever almost everyday all day for the past week. We had to take some cultures of her toe for the infection to get a better understanding of her infection before getting antibiotics.

We're waiting for those results.

After a few days we now have two toes that are infected. She can barely walk they are so swollen. The blisters in her mouth have also come back like crazy. Of course, Kris found her picking on them so they are even worse and bleeding.

The past few days she has been sleeping a lot due to the infection and fevers. I had a 17 hour migraine on Monday and couldn't even move without wanting to be sick. So it was perfect, we slept for 13 hours together on the couch. Neither one of us moved.

I am calling JH again today to get more info but here are her next few appts:

Eye doctor - review her vision, angle of her eye, review for surgery next year on her eye muscles

Endocrine - check up - as we haven't met with them in a while. They will be able to check over her weight and possibly get us on track for next year

Sleep Study - another sleep study as her sleeping has gone back to what it used to be. A lot of screaming and talking. We are not back to sleep walking yet but we are getting up and down in bed a lot.

Chemo - we have another round on Oct. 21 - so I plan for her to be sick the week before Halloween.