I know - it seems strange that she's actually sleeping in this video but she is. She talks a lot, screams a lot, and will even answer questions in her sleep! This will be great when she's a teenager!
Learning sustainability for our family and taking care of kids. Becoming a chicken mom in 2020! Our oldest- Haven, 17, was diagnosed with Neuroblastoma Cancer and ROHHAD Syndrome at age 3. We continue to battle these today.
Subscribe to:
Post Comments (Atom)
ROHHAD in Ireland
I received this story in my email today. It still shocks me that my daughter has ROHHAD. It's a horrible disease that destroys a child...
-
Hi everyone. It's been a long time since I sat and wrote about our daughter's extremely rare disease diagnosis. Literally 15 years a...
-
I received this story in my email today. It still shocks me that my daughter has ROHHAD. It's a horrible disease that destroys a child...
Havey I love hearing your voice even if you are asleep. Your pictures from three years ago I remember well how you looked; you are such a sweet little girl; I had so much fun with you in the desert of California you were so happy and fun. I also sometimes talk in my sleep I just do not answer questions that I know of.
ReplyDeleteI love you very much. C.