Haven wanted me to post a picture of her with her card from Dr. Cooper and Miss Dawn. They are her pediatrician and nurse at Johns Hopkins Riverside office. She was so excited when she received them she had to take a picture.Thank you again! :)
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Hi everyone. It's been a long time since I sat and wrote about our daughter's extremely rare disease diagnosis. Literally 15 years a...
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I received this story in my email today. It still shocks me that my daughter has ROHHAD. It's a horrible disease that destroys a child...
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