While I'm still waiting for results to come back from Haven's sleep study and MRI I did receive a phone call from her Oncology nurse that her IGG levels have dropped down to low and she will need to come in for a dose of IVIG. I can't get in to what an IGG is....way too complicated but it's the immune system. :)
The IVIG dose usually runs 6 - 7 hours - depending on how her body wants to react to it. Sometimes she's good and can take a faster drip and sometimes she needs to take it slow.
Haven also failed her immune test done in February. It takes at least 6 weeks to get this test back. This is, however, what the doctors expected as she is only at 9 months since Hi CY.
We will be at Hopkins all day Monday. We will first visit with her therapist at 11am and then at 1:30pm head to Endocrine for the 6 month follow up. I have a few questions for him and want to review some theories so it should be a good visit.
I figure if I don't get results from him on Monday for both tests then I'll start calling around again. Even if a test is good I think some one should call and say so.
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Hi everyone. It's been a long time since I sat and wrote about our daughter's extremely rare disease diagnosis. Literally 15 years a...
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Sometimes I can't believe how our life changed from 2006 to 2007........ How did doctors get it so wrong for so long
Dear Misty,
ReplyDeletePraying that tomorrow Haven will get good results and that you'll get some answers to the questions that you have.
Please tell Miss Haven that I said hello and that I'm sending her BIG HUGS!
With caring prayers,
Wylene