Before we could have the surgery on her spine we had to have a sleep study to make sure she was completely ready for surgery and she could handle being put under. Of course getting ready for a sleep study is always a major process.
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Hi everyone. It's been a long time since I sat and wrote about our daughter's extremely rare disease diagnosis. Literally 15 years a...
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I received this story in my email today. It still shocks me that my daughter has ROHHAD. It's a horrible disease that destroys a child...
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