Dearest friends....it is with a heavy heart and sadness that I must share that one of our sweetest and dearest friends has lost her battle with ROHHAD and gained her angel wings. I have known Kira and her family for a few years now and am blessed to have known her and had her in our life. We will miss her but take comfort knowing she is watching over all of our babies from above. All our love to her family.
Learning sustainability for our family and taking care of kids. Becoming a chicken mom in 2020! Our oldest- Haven, 17, was diagnosed with Neuroblastoma Cancer and ROHHAD Syndrome at age 3. We continue to battle these today.
Friday, May 31, 2013
ROHHAD: Kira - 9 years old - passes away :(
Dearest friends....it is with a heavy heart and sadness that I must share that one of our sweetest and dearest friends has lost her battle with ROHHAD and gained her angel wings. I have known Kira and her family for a few years now and am blessed to have known her and had her in our life. We will miss her but take comfort knowing she is watching over all of our babies from above. All our love to her family.
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ROHHAD in Ireland
I received this story in my email today. It still shocks me that my daughter has ROHHAD. It's a horrible disease that destroys a child...
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Hi everyone. It's been a long time since I sat and wrote about our daughter's extremely rare disease diagnosis. Literally 15 years a...
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I received this story in my email today. It still shocks me that my daughter has ROHHAD. It's a horrible disease that destroys a child...
Sorry to learn of Kira's passing. I didn't know her or her family, but it's sad to learn of any child's passing. Praying for strength and comfort for her family.
ReplyDeletePraying that Haven and family are doing well.
With prayers & best wishes,
Wylene