The day before the last day of school was the "clean out your desk and get any thing else" from school day. Haven is so proud of herself for such an amazing year at school. Even switching schools in the middle of the year. She received her completion certificate and came home with the biggest smile.
The very last day was Hawaiian day. She was completely decked out with her skirt and flowers...not to mention all the flowers in her hair she got from her uncle Kevin who lives in Hawaii.
Congrats Haven.....it's time for 3rd grade!!
Learning sustainability for our family and taking care of kids. Becoming a chicken mom in 2020! Our oldest- Haven, 17, was diagnosed with Neuroblastoma Cancer and ROHHAD Syndrome at age 3. We continue to battle these today.
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ROHHAD in Ireland
I received this story in my email today. It still shocks me that my daughter has ROHHAD. It's a horrible disease that destroys a child...
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Hi everyone. It's been a long time since I sat and wrote about our daughter's extremely rare disease diagnosis. Literally 15 years a...
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I received this story in my email today. It still shocks me that my daughter has ROHHAD. It's a horrible disease that destroys a child...
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