Learning sustainability for our family and taking care of kids. Becoming a chicken mom in 2020! Our oldest- Haven, 17, was diagnosed with Neuroblastoma Cancer and ROHHAD Syndrome at age 3. We continue to battle these today.
Friday, August 26, 2011
Hurricane Irene
We are ready!!! I highly doubt much will come of this storm..but after a week of earthquakes why not throw in some damaging winds and torrential rain! We hope everyone stays safe and we've set our destination in case of an evacuation.
As of now I can't see us being evacuated....we will just enjoy the show.
UPDATED: Photos from around MD --- 8/26/11
Moving it's way in!
Empty shelves.....
and long lines.....
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ROHHAD in Ireland
I received this story in my email today. It still shocks me that my daughter has ROHHAD. It's a horrible disease that destroys a child...
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Hi everyone. It's been a long time since I sat and wrote about our daughter's extremely rare disease diagnosis. Literally 15 years a...
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I received this story in my email today. It still shocks me that my daughter has ROHHAD. It's a horrible disease that destroys a child...
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