Natalie is a ROHHAD child from Malaysia. We met her and her mother on Facebook and have come to know them very well when they joined our ROHHAD site. On April 26th Natalie fell in to a coma while at the hospital. We are extremely happy to report that Natalie has come out of the coma and is smiling. She has shown us the strength and will she has to fight this horrible syndrome.
We can't begin to tell everyone how happy and excited we are to see her photos and to know she has a huge smile on her face.
Lots of love to Natalie and her family - thank you for letting us in on your life.
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