A few weeks ago (april 24) Miss Haven had to go in to Oncology just for lab work. We are back to doing her IVIG every 8 weeks and labs every 4 weeks. We're trying to see if we can push it out again and see if her immune system has kicked in. She heads back in to Oncology on May 23rd for IVIG.
On May 11th Haven also began physical therapy. We were very excited to finally get this going as we believe this will help her a lot. She really liked her therapist and she stayed strong the entire hour. The first visit was to just test her strength and abilities.
Here she is doing a sideways skipping. She did steps and hopscotch stuff. She has been given 50 visits and will go twice a week for an hour at a time. Tonight is her 2nd visit.
Learning sustainability for our family and taking care of kids. Becoming a chicken mom in 2020! Our oldest- Haven, 17, was diagnosed with Neuroblastoma Cancer and ROHHAD Syndrome at age 3. We continue to battle these today.
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