Learning sustainability for our family and taking care of kids. Becoming a chicken mom in 2020! Our oldest- Haven, 17, was diagnosed with Neuroblastoma Cancer and ROHHAD Syndrome at age 3. We continue to battle these today.
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ROHHAD in Ireland
I received this story in my email today. It still shocks me that my daughter has ROHHAD. It's a horrible disease that destroys a child...
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Hi everyone. It's been a long time since I sat and wrote about our daughter's extremely rare disease diagnosis. Literally 15 years a...
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I received this story in my email today. It still shocks me that my daughter has ROHHAD. It's a horrible disease that destroys a child...
I've kept up with Haven for a while now & I've never commented before but that video was so funny!! I love it!!
ReplyDeleteHope you all have a Merry Christmas and a Happy New Year!!
Tell Princess Haven that I pray for her every day.
Hi, Haven!
ReplyDeleteLoved the video of you and your family as elves!
Deez was great, too!
Hope you have a very Merry Christmas!
With love & prayers,
Wylene
MERRY CHRISTMAS, HAVEN & FAMILY!
ReplyDeleteWith love & prayers,
Wylene