Well it took me a bit longer to do 2009 --- Age 5 - 6 but it is finally done! This was a long year and definitely the most intense year of treatments so far.
We love our baby and it has taken a lot to put these years together - it's hard to see what our life has become and what is now normal to us.
Enjoy
AGE 5 - 6 YEARS OLD
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Hi everyone. It's been a long time since I sat and wrote about our daughter's extremely rare disease diagnosis. Literally 15 years a...
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I received this story in my email today. It still shocks me that my daughter has ROHHAD. It's a horrible disease that destroys a child...
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