Learning sustainability for our family and taking care of kids. Becoming a chicken mom in 2020! Our oldest- Haven, 17, was diagnosed with Neuroblastoma Cancer and ROHHAD Syndrome at age 3. We continue to battle these today.
Thursday, December 10, 2009
Preparing for Winter
Haven and Nikki playing in the snow last Saturday! Nikki loved it. She kept wanting to go out there and she would run and run. Bite at the snow. Then when it turned to ice she loved it even more! She would bite the ice and it would slide away...then she'd chase after it! She just loves it.
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ROHHAD in Ireland
I received this story in my email today. It still shocks me that my daughter has ROHHAD. It's a horrible disease that destroys a child...
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Hi everyone. It's been a long time since I sat and wrote about our daughter's extremely rare disease diagnosis. Literally 15 years a...
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I received this story in my email today. It still shocks me that my daughter has ROHHAD. It's a horrible disease that destroys a child...
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