We met with Endocrine on Monday. I was concerned about this meeting - this would've been one to cause arguments. But instead we received happy news!!!!
Haven is growing - however slow - but she is growing. She is in the 5th percentile right now and showing signs of continued growth. The doctor was pretty happy with that. I was concerned we would have to start giving her growth hormone shots as this is what was said in May prior to Hi CY. But since then she has grown almost an inch!
He also stated with her growing and growth hormone levels at least not below normal she did not have to do the cortisol testing right now. He would put a request in to Oncology to have both growth hormones checked in December during labs.
So we are very happy and excited we do not have to give her a shot 6 days a week! :)
Subscribe to:
Post Comments (Atom)
-
Hi everyone. It's been a long time since I sat and wrote about our daughter's extremely rare disease diagnosis. Literally 15 years a...
-
I received this story in my email today. It still shocks me that my daughter has ROHHAD. It's a horrible disease that destroys a child...
That is great news, praying it continues.
ReplyDelete