I've had some major computer issues this week and I'm not sure how long my laptop will even work tonight...so I'm adding some photos to Haven's flickr site but this is one of my faves.
Last Sunday Kris and I took Haven on a short 10 minute boat ride in the harbor. No one was on the boats so we thought it would be something different for her to experience. I'm especially happy we did it now because she's even more locked down with the C. Diff virus.
But I love that her eyes are once again becoming a clear blue color.
Learning sustainability for our family and taking care of kids. Becoming a chicken mom in 2020! Our oldest- Haven, 17, was diagnosed with Neuroblastoma Cancer and ROHHAD Syndrome at age 3. We continue to battle these today.
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ROHHAD in Ireland
I received this story in my email today. It still shocks me that my daughter has ROHHAD. It's a horrible disease that destroys a child...
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Hi everyone. It's been a long time since I sat and wrote about our daughter's extremely rare disease diagnosis. Literally 15 years a...
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I received this story in my email today. It still shocks me that my daughter has ROHHAD. It's a horrible disease that destroys a child...
When I was undergoing chemo I, too, contracted C Diff. Poor baby! I understand what she's going through. I continue to lift your precious girl up in my prayers.
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