Friday, December 19, 2008
WIKIPEDIA: ROHHAD
Well if you type ROHHAD in to Google or Yahoo you most likely will not find much. There are a few articles and you will find information on Josh Wooten and possibly find Haven's blog site. Well, I work nightly and constantly on changing that and getting as much info out there as I can. So currently I'm working on a Wikipedia definition of ROHHAD. I'm learning as I go - since I've never done it before but it seems to be coming along great!
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ROHHAD in Ireland
I received this story in my email today. It still shocks me that my daughter has ROHHAD. It's a horrible disease that destroys a child...
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I received this story in my email today. It still shocks me that my daughter has ROHHAD. It's a horrible disease that destroys a child...
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A short update until tomorrow - as we were admitted to the hospital but luckily my phone has Internet!! Haven did very well through surgery!...
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