1. Sleep talking
2. Sleep walking
3. Hypertension
4. Voice Modulation
5. Gastroesophogeal Reflux
6. Massive muscle lump growth on the back
CLICK THE CHARTS TO SEE COMPARISONS
Sunday, November 30, 2008
Children's Memorial ROHHAD vs. HAVEN
Below is a chart I have made comparing Haven to the 15 patients with ROHHAD done by Dr. Weese-Mayer in Chicago. Note: There are a few areas of concern that I have that were not measured or noted by Dr. Weese-Mayer.
1. Sleep talking
2. Sleep walking
3. Hypertension
4. Voice Modulation
5. Gastroesophogeal Reflux
6. Massive muscle lump growth on the back
CLICK THE CHARTS TO SEE COMPARISONS
1. Sleep talking
2. Sleep walking
3. Hypertension
4. Voice Modulation
5. Gastroesophogeal Reflux
6. Massive muscle lump growth on the back
CLICK THE CHARTS TO SEE COMPARISONS
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Hi everyone. It's been a long time since I sat and wrote about our daughter's extremely rare disease diagnosis. Literally 15 years a...
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I received this story in my email today. It still shocks me that my daughter has ROHHAD. It's a horrible disease that destroys a child...
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