Below is a chart I have made comparing Haven to the 15 patients with ROHHAD done by Dr. Weese-Mayer in Chicago. Note: There are a few areas of concern that I have that were not measured or noted by Dr. Weese-Mayer.
1. Sleep talking
2. Sleep walking
3. Hypertension
4. Voice Modulation
5. Gastroesophogeal Reflux
6. Massive muscle lump growth on the back
CLICK THE CHARTS TO SEE COMPARISONS
Learning sustainability for our family and taking care of kids. Becoming a chicken mom in 2020! Our oldest- Haven, 17, was diagnosed with Neuroblastoma Cancer and ROHHAD Syndrome at age 3. We continue to battle these today.
Sunday, November 30, 2008
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