Well they've been here for 2 days now. Today my dad took them down to the Inner Harbor.....ha ha ha...they got stuck in rush hour traffic in the rain!!! I love it...someone finally feels my pain in the family!!! I thought I'd throw some pictures up of the group. Dad grilled out for all of us. Stryder loves to run...he's awesome. Haven kept quiet tonight. She hasn't felt very well all day and I guess she had a 4 hour nap and is again back asleep. She had a fever this afternoon. I think Stryder makes her nervous because he likes to run and she keeps worrying he's going to get hurt.
Learning sustainability for our family and taking care of kids. Becoming a chicken mom in 2020! Our oldest- Haven, 17, was diagnosed with Neuroblastoma Cancer and ROHHAD Syndrome at age 3. We continue to battle these today.
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ROHHAD in Ireland
I received this story in my email today. It still shocks me that my daughter has ROHHAD. It's a horrible disease that destroys a child...
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Hi everyone. It's been a long time since I sat and wrote about our daughter's extremely rare disease diagnosis. Literally 15 years a...
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I received this story in my email today. It still shocks me that my daughter has ROHHAD. It's a horrible disease that destroys a child...
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